Haemochromatosis
The UK NSC policy on Haemochromatosis screening in adults
More Information
Haemochromatosis is a condition where too much iron is absorbed by the body. After a while, the body starts to deposit the extra iron in other areas of the body. It usually gathers around organs, such as the heart and liver.
Once the iron starts building up it causes uncomfortable symptoms, such as nausea, abdominal pain, constipation and joint pain. It can also lead to liver damage, heart failure and diabetes.
» Read more about haemochromatosis on NHS Choices
Policy Position
A national screening programme for haemochromatosis is not recommended.
This policy was reviewed in Apr 2010 but no significant changes were made. It is due to be considered again in 2013/14, or earlier if significant new evidence emerges.
Evidence Supporting the Policy
The UK NSC received a review of the evidence of screening for haemochromatosis set against its criteria. On the basis of this review it was decided that screening for haemochromatosis should not be recommended.
Stakeholders
British Association for Study of the Liver
British Liver Nurses' Forum
The British Liver Trust
The British Society for Haematology
British Society of Gastroenterology
The Haemochromatosis Society
Royal College of Pathologists
Royal College of Physicians
Royal College of Physicians of Edinburgh
The stakeholder groups will be involved when the policy is next reviewed. If you think your organisation should be added, please contact us.
